Hi. I just stumbled on your site from somewhere and I literally just this mornng read an article in the new good housekeeping about a disease called Celiac (I think there is more to the name), that is basically a severe reaction to gluten. Anyway the typical diagnosis takes about 11 years, although it is improving now. Anyway- it is the August issue with Rachel Ray on the cover, maybe it might help....
WOW! That's a lot of meds and testing!!! I'm wondering if all of those meds are clashing with one another. I'm no doctor, but I've witnessed a few too many on lots of prescriptions...only to find out down the road that some of those drugs should not be mixed.
I'm keeping my fingers, toes and everything else crossed that neurologist #6 will be a TRUE migraine specialist and will be able to shed some light on your situation.
Wow - I can't even imagine what you go through every day. Hang in there and keep trying. In this age of "miracle" medicines, there has got to be one just for you. I'll be praying for an answer for you.
Oh God, That suuuuuuuuuuuuuuuuuuuuuuuuuuucks. I am sor sorry to hear you are going through that. I have a few friends with migraine problems. And it sounds awful.
My husband just wrote a story about a medical device that will soon hit the market that sends magnetic pulses into the brain and neutrelizes migraines. People who test drove it loooved it. So I guess just know there are probably new things on the way that might help. Otherwise, sounds like you are doing everything you can to unlock the mystery. All of things other people said, diet changes, allergies, medication side effects might trigger it, also the hormonal cyle BCP might trigger it. Ugh. Hang in there.
Sorry you are going through this! I went through all the same tests. Accupuncture DOES help!!! I had a doctor who had gone back and learned accupuncture when he found it to be effective for his pain. He learned the art. I didn't believe, but it DOES work! Verapamil (spelling?) was a drug that helped me as well.
It turns out I was one of the hole in the heart people. I had a relatively small PFO that was corrected. My migraines are rare now -- it is amazing when I recall what it was like before the surgery. I hope you find your solution. Best of luck -- I'm saying some prayer for you. Migrains suck. Accupuncture may be worth a drive for you -- one session per week can help a LOT. Even learning the correct pressure points might be helpful.
One crazy suggestion: My doctor who learned accupuncture wanted me to stay away from silver. No silver jewelry. Since I didn't wear it often this wasn't a big deal to me... thought I'd pass it on to you, you never know!
Oh, that's awful. And I was so hoping the comments from last time would have helped you, but it looks like you've been through everything and more. Best wishes with getting it sorted out.
Ugh. My brother-in-law had debilitating migraines for five years - what finally helped him was TMJ treatment, turns out that his jaw was so compressed/compacted that it was messing everything up. I didn't see it in your list and a regular MRI might have missed it (they do a specific TMJ MRI as part of the diagnosis rather than a whole-head one as well as a ton of X-rays.) Anyway, it's a thought. Hope you can find relief!
you guys are super. seriously. i'm always encouraged when i hear of someone (or some people, in this case!) who've come out the other side of something like this.
here's my questions/comments -- kristi, is gluten the same as a wheat allergy? i did go off of wheat for a while, on dr.'s instructions, trying to see if it was a wheat allergy. is this different? i'm clueless.
also, i should have mentioned that each drug listed got its own 3 month trial, so as to not mix reactions...
acupuncture, here i come! i'll work on that for sure.
also, the medical device, lisa; i've heard about it, and many ppl. i know who've tried it had the leads move -- and then they have to get them surgically re-placed where they belong! ack! it scares me. have you heard anything about that?
and TMJ....interesting....i'll have to add that to the 'ask dr.' list.
just passing through but thought i would leave my two cents worth. I have had a life of migrains that started when I was midteen and it turns out it is a homone imbalance. I would make sure you do not have something like pcos or endomitrosis that could be totally missing things up. Just a thought.
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